I just wanted to write a quick blurb to ask for prayer. James had an appointment yesterday at MDA, and we found that the upcoming treatment is not what we had thought. It was a simple misunderstanding, but anyway, James will have a brief respite from intense chemotherapy until next Wednesday. Then chemo intensifies and new chemo drugs are introduced. His counts will drop again during this time and he can potentially get sick (leading to hospitalization). Thus, we will not be able to travel during Thanksgiving or Christmas to see Joy's family and we will not be able to return to church anytime soon. Though we are sad, James' wellness is our first priority. We will be posting more about his upcoming treatment schedule soon, but on to the second prayer request.
We received a form letter yesterday regarding the newborn blood test that was performed on Adrianne one week after birth. This letter said that she may be at risk for Congenital Adrenal Hyperplasia (CAH). This is not good, and this letter is not a confirmation that she has CAH. We will likely need further testing. PLEASE pray earnestly that this test is WRONG and that Adrianne does not have CAH. As I write this, my heart is heavy and we feel overwhelmed. We know God is so good and in control. We have to give this to Him because we are truly unable to take this on without Him. We will keep you updated as we find out more. Thank you for your prayer and ongoing support!
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We are praying for you guys. Love!!!
Dear Ryan Family,
I searched "CAH" today and your blog showed up.
If you want information about CAH and its newborn screen, I will gladly talk to you. Just call our office or email me. While CAH screening, in SOME states, has fairly high rate of false positives, you must not delay in seeking medical help. You should call your pediatrician ASAP. Depending upon the newborn screen hormone levels detected, the doctor may recommend a re-test or going immediately to the ER of the closest medical center that cares for babies with CAH. There the child will be evaluated by a pediatric endocrinologist. God bless & congratulations on the birth of your daughter. I will keep your family in my prayers.
Sincerely,
Kelly R. Leight
President and Founder
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
2414 Morris Ave., Suite 110
Union, NJ 07083
Office: (973) 912-3895
Toll free: (866) 227-3737
Fax: (973) 912-8990
Email: kelly@caresfoundation.org
Website: www.caresfoundation.org
Disclaimer:
Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider. You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only.
Praying without ceasing...we love you guys.
Hi Guys, just wanted to let you know that we are praying hard here in Nashville for all of you. Joy, if you have any questions or just need to talk to a mom who has been through this roadmap, please email or call. We are thinking about you. Sharliss, David & Katherine Arnold
Sending our love to you, and our prayers to heaven on your behalf!!!
Greg & Joy,
we got your message tonight and are earnestly praying. we love you so much!
Kim & Jeff
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