Today was a hard day for our little guy.
5:45-left for MD Anderson
6:45-arrived with a hungry and thirsty 16 month old and had to wait for them to open the clinic
7:15-accessed his port and got his blood for labs
7:20-back to the lobby to wait with a hungry and thirsty 16 month old
8:00-back to see the doctor and to get his counts-his neutrophils had gone up so he is not considered neutropenic at this time
9:00-take us for his spinal tap where he will get his chemo; by this time we have an irritated, hungry and thirsty 16 month old
9:30-wakes up from procedure and gets to eat!!!
10:00-head back to lobby of clinic to await more chemo and the flu shot-now we just have the irritated 16 month old
10:30- threw a fit in the lobby because I took a grape sucker away and he did his best impresion of a fish out of water, requiring dad to walk him out of the clinic to regroup
10:45-go back to get vincristine(chemo) and flu shot
11:30-finally got chemo and flu shot although he had to be stuck twice for the flu shot because he moved--lets just say he was not a happy camper
12:00-stopped by the pharmacy, gave him his first dose of steroids, and headed home
Once we got home we gave him some Tylenol around 1:30. He had a pretty good afternoon although he was a little fussy. At 4pm he got 2nd dose of steroids and had some dinner. At 7pm he got 2 oral chemos, Tylenol, and some Zofran(helps with nausea) and at 8pm we put him to bed. I have to say I am glad today is coming to a close!
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5 comments:
Good night, you guys go through so much! Hang in there! I'm praying for you!
Bless your sweet family!!!!! Let me know if you ever need us to watch Adrianne. The girls LOVE having precious babies around the house. They are the best baby sitters. :) Seriously, let me know.
No words...Can't even begin to imagine. Praying for your sweet family.
No words...Can't even begin to imagine. Praying for your sweet family.
Oh, what a tough day!
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