It has been a full week since I have post so I wanted to let you know the latest on James. Since we have been home from the hospital and the clinic last week James has been more himself. he went back to school on Monday and had a great day. One thing that seems to be a reoccurring problem is his sleep pattern. Friday night and Sunday night he woke up screaming at 12am and would not go back to sleep in his bed. Greg and I decided to bring him to our room and it took him 30 minutes to get settled and go back to sleep. He continued to wake up every 2 hours and it would be another 30 minutes to get back to sleep.
Needless to say, Greg and I are exhausted and puzzled at what is causing this. This kind of behavior is expected with steroids but he doesn't start steroids until next week. Anyway when I got him on Sunday night, he was complaining that his ears were hurting. So Monday after school I took him to our pediatrician. He had a slight ear infection and Dr. Tony started him on antibiotics. Last night was some better, he woke up at 4:30 before he came and got in our bed.
Please pray that this will resolve itself. I also ask for prayers for next week. On Thursday(18th) we will head to the clinic for his LP with chemo, vincristine, and his antibiotic plus he will be starting steroids. Thank you for your continued prayer and support.
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James Gregory Ryan II is our precious blonde haired, blue eyed, tiny little man full of love, smiles and laughter. James was diagnosed with Leukemia on July 12, 2007 at the age of 13 months. Our journey with him through this trial begins here.
6 comments:
I am so sorry! Those ear infections are not fun! You should call me in the middle of the night. Cash and I are usually up during those hours. :)
I will be praying for James (and you)to start getting some comfort and rest. I really enjoyed talking with you both at the Fox's Christmas party. Best of luck in the half marathon!
YES, I will pray for James :) Maybe initially the sleep interruption was in response to something, but now maybe it's that internal alarm that goes off in little ones???
Phil 4:13!
Sarah
I am always praying for you guys. I will be thinking of you guys on the 18th.
Hold Tight you guys, remember, one day at a time. I am so proud of this little guy with everything he feels, hurts and goes through. I wish her could just tell you more. Praying the next two weeks will bring you many blessings and smiles.
We Are Going To Win!
Sharliss
I received the Liaison newsletter from the Wheaton College Psy.D. program today and it had a link to your blog. I read your story and want you to know that I will be praying for James and your family. I don't know you personally, but felt led by the Lord to pray for you. Keep the faith and hope...His blessings will surely come.
With Love in Christ
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