Tuesday, August 7, 2007

Good News and More Challenges

Sorry it has been a couple of days since we blogged. James, Nana, and I went to the doctor on Monday as a follow up from our hospital stay so that they could check his blood levels. Although his counts had dropped a little we received some very good news. They performed a very sensitive test on James' bone marrow called minimal residue disease. It is a more sensitive and in depth test than when the pathologist reads the report. Anyway what they found was that James has no sign of acute lymphoblastic leukemia and that he is in the 95% cure rate. That is as high as they can go! We were beyond thrilled at the news. The doctor said that there is always a chance of relapse but in James's case, his chances are low. They are doing his Day 29 bone marrow in Friday and expect it to show he is in remission. Alot have ask if his treatment ends once he is in remission--it does not. James will be in treatment for the next 3 years and will not receive the label on cure until after 5 years. We have just begun this journey but God has been faithful and I know will continue to be faithful through the highs and lows.

One of the big challenges we are facing right now is a diaper rash. When we were at the hospital on Monday, a wound nurse consulted with us on some things we could do. I called the doctor twice today because none of those things were working. Please pray that James gets some relief. Because of his medication we change his diaper about 12 times a day which does not help heal a rash. Also because of the steroids he is on he is having trouble pulling up from a sitting position. We are having to go back and teach him how to do that.

We so appreciate your prayers and support thus far and humbly ask that you continue to remember us through our joys and hardships.


Kathryn said...

We love you guys and have not stopped praying for James. So glad to hear the wonderful news! We will stay on our knees.

Steve, Kathryn, and the boys

Kim and Casey Fox said...

I am sure you have thought of this, but you may try "Dr. Smith's" on his diaper rash. Laney gets sever diaper rash, and it always does the trick very quickly. We are so happy with the good news, and are continuing to keep you in our prayers.

the ildes said...

We're so very glad to hear the good news!!! Numbers that should be climbing are climbing, and those that should be falling are falling. PRAISE the LORD!!! I know that this journey is so incredibly difficult, but I thank God for His promise (in Matthew, Mark, AND Luke) that nothing that you and James will face will be impossible!
Much love and many prayers,
Stacie, John, & family

Anonymous said...

Dear Niece and Nephew,

I want to assure you that the Southern California branch of the family has been with you from the beginning of this ordeal. We are "watching and praying" very much along with you, each of us in his or her own way. You and your young family are always in our thoughts and meditations.

Love, Therry and Ed

Shelley said...

All I can say is Praise God!!!! He is SOOOO good!!
We have been following James' progress and I know how happy it makes me to read this good news, I can only imagine your emotion!!!!
Many hugs and kisses Baby James!
Shelley, Jay and Brady.. (friends of MaryBeth)

Anonymous said...

WOW!! What great news! So glad to get this. It totally recharged me. Thanks so much for being so faithful to share with the manyof us who are praying. You are all in our prayers 24/7 and we will continue to pray without ceasing. Keep it up Ryans!! You are all such an inspiration.

Shari Rahm

Anonymous said...

God is GOOD!!!! I am so glad to hear the good news about James. Your family continues to be in our thoughts and prayers.

The Gustafson Family