Wednesday, January 30, 2008
His labs looked great--hemoglobin 10.2, platelets 265, and his ANC was 2800. So we don't go back for another 2 weeks and at that time he will get vincristine and start steroids over again for another 5 days(yuk!) Thank you so much for your continued prayer and support.
Tuesday, January 29, 2008
I am asking you to pray for our good friends Kim and Jeff and their 10 week old son, Brennan. He was admitted to the hospital on Friday and will be there for at least 3 weeks. Brennan has a pretty severe milk protein allergy but about a week ago he started having symptoms of a stomach virus. The combination of these two things degenerated the lining of his digestive system. The doctors didn't figure out what was going on until it was almost too late. By the time they were admitted to the hospital he was so dehydrated that his eyes were sunken and his skin wrinkled up. His diagnosis is intractable diarrhea. He can't absorb fats or proteins so he was actually starving to death when he was admitted.
He underwent surgery to put in a central line as well as a feeding tube that goes from his nose to his small intestine. He also had an endoscopy to assess the severity of the damage to his intestines. He came through the surgery fine and according to family the doctors thought things looked OK but will wait to see what the biopsy shows.
Pray also for their 3 year old, Tommy, who is at his grandparents in Nashville and having a pretty hard time. Pray for Kim and Jeff as they juggle their time at the hospital and their time at home with Tommy. Pray that the doctors have clarity and wisdom to treat Brennan. Kim and Jeff are very dear friends of ours and have walked with us through our trials and we want to do the same for them. Thank you.
We head to the clinic tomorrow so I will update after we get home.
Sunday, January 27, 2008
I use this is a gauge to determine how James is feeling. It looks like he is feeling pretty good! We have had a great week. He has felt better this last week since he has when he first was diagnosed. He is talking non stop, running everywhere, and getting into everything. It has been almost two weeks since we have been to the clinic. We are scheduled to go this Wednesday where they will do blood counts, doctor's visit, and he will get his IV antibiotic.
Please continue to pray that the chemo does its job and his counts remain stable. Please pray for me as well. I get really nervous when I think about James going back into the nursery at church or going to school. I know I can't control what happens but any sickness could put us in the hospital. Pray that we will have the discernment to know when it is time. Thank you for your continued prayers and support.
Monday, January 21, 2008
Sunday, January 20, 2008
Yesterday I woke around 6am to hear her coughing. I told Greg that we needed to take her to the doctor. I was tied up all day so Greg took her. He came home with a nebulizer, nasal spray, and an antibiotic. She has to do 2 breathing treatments a day as well as take an antibiotic 2x a day. My mom is coming in tomorrow so I am very thankful for the help I will receive giving all the medications. I'm starting to feel like a pharmacy!
Please pray that we will make a smooth transition out of the steroids and James will begin to feel himself. Pray for Adrianne that she will make a speedy recovery and respond well to her breathing treatments and medication. Thank you.
Wednesday, January 16, 2008
James,of course, was a little champion by the time everything was done. We had to wait for his oral chemo to be compounded so he put on a show for the employees of the pharmacy. In fact he went up to a man in line and stuck up his arms for him to hold him-what can I say the kid has no fear!
Please pray for us especially for the next 5 days. You have been with us long enough to know steroids are no fun for anyone. Pray that he will have minimal side effects from all the chemo he had today. Also pray that his liver would be protected. We are back on the chemo(methotrexate) that caused his enzymes to get really high. Also I got a tentative end date-September 2010-please continue to walk with us down this long road ahead.
Some more good news--they don't want to see James back in the clinic for 2 weeks. I might go through withdrawal---just kidding!
Monday, January 14, 2008
Anyway, we are slated for a big day on Wednesday provided his counts are good. Please continue to pray for us as everyday brings about a new challenge.
Wednesday, January 9, 2008
lumbar puncture with chemo
vincristine through his port
start a 5 day pulse of steroids
take 2 oral chemos
So please pray that his counts recover and pray that he will have minimal side effects from chemo and steroids. I wish I had more to write but I am exhausted and I am going to take advantage of the fact that both kids are in bed!
Sunday, January 6, 2008
Saturday, January 5, 2008
Wednesday, January 2, 2008
We have been looking forward to this phase from the beginning. There will most likely be bumps in the road and we will be reminded that James has leukemia BUT we will get to establish the "new" normal in our life.
We thank you for your prayers and we continue to ask for more. We love all of you and are so thankful for your love and support.