Yesterday was a pretty uneventful trip to the clinic. And I have to say, I am very glad we went yesterday instead of today. The only thing they had scheduled was for his labs to be drawn and for us to see the doctor. His doctor came in to discuss the next part of James treatment. We found out that next Tuesday James will go back to the OR and have a port put in. They will take out his CVC. We are thrilled about this because it will make life easier. During his surgery, they will do his lumbar puncture and administer chemo. When he wakes up we will go back to the clinic and they will access his port and give him vincristine(another chemo). We will get to go home on Tuesday barring any complications. That is when I will start the oral chemo that is given to him every night. We are told this phase last for another 28 days and that his counts will fluctuate.
Our next visit to the clinic will be Monday to meet with the OR team and they will decide whether or not to give him a transfusion. His hemoglobin has fluctuated so they will decide then what to do before his surgery.
Please pray for his upcoming surgery that everything goes smooth and there are no complications. Also he is not sleeping like he was before he got sick. Please pray that his body will make the necessary adjustments to get him back on track. Please pray for his Nana because she is the one that gets up with him during the night. Please pray for our family-it is hard to believe in less than 2 weeks we will be adding another member. God is good--thank you for your prayers and support.