Friday, November 21, 2008
Steroids, steroids, steroids
Can you believe it-it's that time again. James started steroids Wednesday and it wasn't to long in the dose that we started seeing the effects. Thursday morning James woke up at 3:45 am and this morning he woke up at 4:30 am. We have had bouts of crying on and off all morning long and he is distressed that he can't have milk. The virus that I wrote about a week or so ago has come back. He has had diarrhea for several days and that has resulted in a raw bottom. The doctors want him to stay off dairy until the diarrhea subsides. So we go back and forth constantly about him not being able to have milk. We really covet your prayers right now. Every day brings new battles. Every day is a constant reminder that he has this disease. I thought that by a year or so into treatment that this would get easier-but I have to say it is still heartbreaking and devastating. So we ask for your prayers as we walk this road and continue to press on.