Friday, November 21, 2008

Steroids, steroids, steroids

Can you believe it-it's that time again. James started steroids Wednesday and it wasn't to long in the dose that we started seeing the effects. Thursday morning James woke up at 3:45 am and this morning he woke up at 4:30 am. We have had bouts of crying on and off all morning long and he is distressed that he can't have milk. The virus that I wrote about a week or so ago has come back. He has had diarrhea for several days and that has resulted in a raw bottom. The doctors want him to stay off dairy until the diarrhea subsides. So we go back and forth constantly about him not being able to have milk. We really covet your prayers right now. Every day brings new battles. Every day is a constant reminder that he has this disease. I thought that by a year or so into treatment that this would get easier-but I have to say it is still heartbreaking and devastating. So we ask for your prayers as we walk this road and continue to press on.

5 comments:

Lorren said...

Praying for grace and mercy for you guys!!

Ashley McWhorter said...

Praying for you and sweet baby James. Also praying for that sweet little bottom and that it would heal quickly. Love you!

Amy said...

We will be praying for you guys! We love yall.

Heidi said...

Praying for you!

Michael said...

I'm slow to put things together so please forgive me :) Our kids are in Sonkids together...and we took a prenatal class together at the Y (you remembered and I didn't)...and I had heard about your story through my friend Michelle Keyes (mother of Carson)...she didn't tell me your name, just that she saw you at MD a couple of times with your son.

I will be praying for James and for his healing. It's comforting to know that God is always good, sovereign and in complete control over James' illness.

God's speed and much love,
Sarah Watson