Today was a hard day for our little guy.
5:45-left for MD Anderson
6:45-arrived with a hungry and thirsty 16 month old and had to wait for them to open the clinic
7:15-accessed his port and got his blood for labs
7:20-back to the lobby to wait with a hungry and thirsty 16 month old
8:00-back to see the doctor and to get his counts-his neutrophils had gone up so he is not considered neutropenic at this time
9:00-take us for his spinal tap where he will get his chemo; by this time we have an irritated, hungry and thirsty 16 month old
9:30-wakes up from procedure and gets to eat!!!
10:00-head back to lobby of clinic to await more chemo and the flu shot-now we just have the irritated 16 month old
10:30- threw a fit in the lobby because I took a grape sucker away and he did his best impresion of a fish out of water, requiring dad to walk him out of the clinic to regroup
10:45-go back to get vincristine(chemo) and flu shot
11:30-finally got chemo and flu shot although he had to be stuck twice for the flu shot because he moved--lets just say he was not a happy camper
12:00-stopped by the pharmacy, gave him his first dose of steroids, and headed home
Once we got home we gave him some Tylenol around 1:30. He had a pretty good afternoon although he was a little fussy. At 4pm he got 2nd dose of steroids and had some dinner. At 7pm he got 2 oral chemos, Tylenol, and some Zofran(helps with nausea) and at 8pm we put him to bed. I have to say I am glad today is coming to a close!